The patient and family programme is aimed at providing practical information on advances in the treatment of each of the amyloidosis disorders. It will provide an opportunity to ask questions of the experts. Most exciting is the chance to hear first hand the insights and knowledge of two world leaders in amyloidosis, Professors Philip Hawkins from University College, Londonand Rodney Falk from Harvard University, Boston.
10.20 – 10.50am WELCOMING COFFEE
Session 1 10.50am – 12.20pm
Chair : Patricia Neely
10.50 -11.00 What is amyloidosis?
11.00 -11.20 What are the different types of amyloid diseases
11.20 – 12.00 Amyloidosis of the Heart
12.00 – 1.00pm Are we close to a cure for amyloidosis?
12.20 – 1.00pm LUNCH
Session 2 1.00pm – 3.00pm
Chair : Linda Mekhael
1.00 – 1.10 pm The importance of education and community awareness of
1.10 – 1.20pm A personal perspective on fighting for a cure for all people with
1.20 – 3.00pm Interactive session based on questions submitted by attendees
similar in format to the Westmead Forum in May 2016 with the
goal of covering all recent advances in each form of amyloid
disease including familial amyloidosis.
3.00pm WORKSHOP CLOSURE